{"id":116368,"date":"2022-01-20T02:11:00","date_gmt":"2022-01-20T07:11:00","guid":{"rendered":"https:\/\/ifamnews.com\/?p=116368"},"modified":"2022-01-20T02:11:02","modified_gmt":"2022-01-20T07:11:02","slug":"charlie-gard-une-loi-pour-lui-rendre-justice","status":"publish","type":"post","link":"https:\/\/ifamnews.com\/fr\/charlie-gard-une-loi-pour-lui-rendre-justice","title":{"rendered":"Charlie Gard : une loi pour lui rendre justice"},"content":{"rendered":"\n

Le petit Charlie Gard (2016-2017) n’est pas mort en vain. Le Parlement britannique travaille sur un projet de loi visant \u00e0 permettre aux enfants gravement malades d’\u00eatre soign\u00e9s \u00e0 l’\u00e9tranger, en vertu de l’amendement \u00ab\u00a0Charlie’s Law\u00a0\u00bb inclus dans la loi sur la Protection Sociale.<\/p>\n\n\n\n

Les propositions de la Chambre des Lords devraient permettre aux parents d’intervenir plus facilement dans les d\u00e9cisions des m\u00e9decins traitant leurs enfants. Les mesures comprennent un nouveau syst\u00e8me de m\u00e9diation, le droit \u00e0 des conseils m\u00e9dicaux suppl\u00e9mentaires et une aide juridique, si l’issue est une bataille judiciaire co\u00fbteuse.<\/p>\n\n\n\n

De mani\u00e8re significative, l’amendement tend \u00e0 limiter le pouvoir des juges de rendre des ordonnances emp\u00eachant les parents d’emmener leurs enfants \u00e0 l’\u00e9tranger lorsqu’il n’y a pas de risque significatif pour la sant\u00e9 des enfants.<\/p>\n\n\n\n

Si l’amendement est adopt\u00e9, ce sera une belle revanche pour les parents du petit Charlie, mort \u00e0 Londres \u00e0 l’\u00e2ge d’un an \u00e0 l’\u00e9t\u00e9 2017, apr\u00e8s que la Haute Cour britannique a rejet\u00e9 la perspective de l’emmener aux \u00c9tats-Unis d’Am\u00e9rique pour y subir un traitement exp\u00e9rimental.<\/p>\n\n\n\n

Une douleur qui ne peut \u00eatre oubli\u00e9e<\/strong><\/p>\n\n\n\n

La discussion de l’amendement a \u00e9t\u00e9 accueillie favorablement, comme on pouvait s’y attendre, par Chris Gard et Connie Yates, les parents. \u00ab\u00a0Aucun parent ne devrait avoir \u00e0 faire face \u00e0 la douleur inimaginable de la perte de son enfant, sans parler de l’\u00e9puisement de mener publiquement une bataille juridique\u00a0\u00bb a d\u00e9clar\u00e9 la m\u00e8re au Catholic Herald<\/a> <\/em>.<\/p>\n\n\n\n

Le stress \u00e9motionnel \u00e9tait trop important, ajoute Connie Yates, c’\u00e9tait insupportable. Il est essentiel que les parents aient les moyens de r\u00e9soudre les litiges avec les m\u00e9decins responsables des soins de leurs enfants.<\/p>\n\n\n\n

\u00ab\u00a0Nous ne voulons pas qu’un autre parent soit \u00e0 nouveau impliqu\u00e9 dans des litiges traumatisants avec les h\u00f4pitaux, alors qu’il devrait passer son temps avec son enfant, et nous ne voulons pas non plus que les m\u00e9decins soient confront\u00e9s \u00e0 des litiges \u00e9motionnellement stressants qui co\u00fbtent cher au NHS (Service de Sant\u00e9 National), aux parents et au gouvernement\u00a0\u00bb, a conclu Connie.<\/p>\n\n\n\n

\u00c9viter les litiges inutiles<\/strong><\/p>\n\n\n\n

L’amendement est sign\u00e9 par la baronne Finlay de Llandaff, professeur de m\u00e9decine palliative, et devrait \u00eatre inclus dans le projet de loi visant \u00e0 restructurer le NHS britannique<\/a>. La baronne Finlay \u00e9tait convaincue que son amendement serait adopt\u00e9, estimant que tant les familles que le syst\u00e8me de sant\u00e9 en b\u00e9n\u00e9ficieraient.<\/p>\n\n\n\n

\u00ab\u00a0Il ne peut y avoir de plus grand cauchemar pour un parent\u00a0\u00bb que de se retrouver dans la situation de M. et Mme Gard, a d\u00e9clar\u00e9 le repr\u00e9sentant de la Chambre des Lords. Les conflits avec les m\u00e9decins traitants, surtout lorsque la vie d’un si jeune enfant est en danger, finissent par \u00e9puiser l'\u00a0\u00bb\u00e9nergie\u00a0\u00bb des parents et d\u00e9truisent leur confiance dans l’\u00e9quipe m\u00e9dicale.<\/p>\n\n\n\n

\u00ab\u00a0Dans le monde d’aujourd’hui, poursuit Mme Finlay, nous savons que nos services cliniques sont d\u00e9j\u00e0 d\u00e9bord\u00e9s, m\u00eame en l’absence d’affaires juridiques complexes. Par cons\u00e9quent, un proc\u00e8s peut s’av\u00e9rer incroyablement co\u00fbteux pour le syst\u00e8me de sant\u00e9, ainsi que pour la famille.\u00a0\u00bb<\/p>\n\n\n\n

L’amendement Finlay propose \u00ab\u00a0une m\u00e9diation ind\u00e9pendante, acceptable pour les deux parties et propos\u00e9e rapidement en cas de conflit\u00a0\u00bb. Bien que l’amendement ne stipule pas que les parents peuvent demander une intervention si les m\u00e9decins la jugent inutile, la baronne Finlay a soulign\u00e9 que \u00ab\u00a0certaines th\u00e9rapies s’av\u00e8rent ne pas \u00eatre b\u00e9n\u00e9fiques, m\u00eame lorsqu’elles sont administr\u00e9es avec les meilleures intentions, il est donc important qu’il n’y ait pas de preuve de pr\u00e9judice significatif\u00a0\u00bb.<\/p>\n\n\n\n

La solution propos\u00e9e par la Chambre des Lords vise donc \u00e0 \u00e9viter autant que possible les batailles juridiques. \u00ab\u00a0Apr\u00e8s tout, explique Finlay, les parents veulent savoir qu’ils ont tout essay\u00e9 et que rien n’a \u00e9t\u00e9 n\u00e9glig\u00e9 : ils portent le souvenir de la maladie de leur enfant avec eux pour le reste de leur vie, un souvenir qui est facilement contamin\u00e9 par des conflits juridiques\u00a0\u00bb.<\/p>\n","protected":false},"excerpt":{"rendered":"

A la Chambre des Lords, un amendement qui aurait sauv\u00e9 la vie du petit gar\u00e7on<\/p>\n","protected":false},"author":545,"featured_media":116151,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"mc4wp_mailchimp_campaign":[],"jnews-multi-image_gallery":[],"jnews_single_post":{"subtitle":"A la Chambre des Lords, un amendement qui aurait sauv\u00e9 la vie du petit gar\u00e7on","format":"standard","video":"","gallery":"","source_name":"","source_url":"","via_name":"","via_url":"","override":[{"template":"1","single_blog_custom":"","parallax":"1","fullscreen":"1","layout":"right-sidebar","sidebar":"default-sidebar","second_sidebar":"default-sidebar","sticky_sidebar":"1","share_position":"top","share_float_style":"share-monocrhome","show_share_counter":"1","show_view_counter":"1","show_featured":"1","show_post_meta":"1","show_post_author":"1","show_post_author_image":"1","show_post_date":"1","post_date_format":"default","post_date_format_custom":"Y\/m\/d","show_post_category":"1","post_reading_time_wpm":"300","zoom_button_out_step":"2","zoom_button_in_step":"3","show_post_tag":"1","show_prev_next_post":"1","show_popup_post":"1","number_popup_post":"1"}],"image_override":[{"single_post_thumbnail_size":"crop-500","single_post_gallery_size":"crop-500"}],"trending_post_position":"meta","trending_post_label":"Trending","sponsored_post_label":"Sponsored by","sponsored_post_name":"","sponsored_post_url":"","sponsored_post_logo":"","sponsored_post_desc":""},"jnews_primary_category":{"id":"819"},"jnews_social_meta":{"fb_title":"","fb_description":"","fb_image":"","twitter_title":"","twitter_description":"","twitter_image":""},"jnews_override_counter":{"view_counter_number":"0","share_counter_number":"0","like_counter_number":"0","dislike_counter_number":"0"},"footnotes":""},"categories":[809,819],"tags":[2893,15025,9679,8024],"class_list":["post-116368","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-foreground-fr","category-vie","tag-euthanasie-3","tag-grande-bretagne-2","tag-nhs-fr","tag-regno-unito-fr"],"yoast_head":"\nCharlie Gard : une loi pour lui rendre justice - 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